Arbor View Redux

 So let’s see. They’re kicking my ass and PT and OT. I do an hour and a half or more a day and sometimes get homework. Everything aches lol. The food is monotonous. I have actually been served the same exact meal two days in a row twice now. Once it was chicken salad and coleslaw and the other time it was tuna salad and coleslaw and believe me I’m just sick of it lol.  We are trying to get the swelling out of my right leg they did Venogram to be sure it wasn’t a blood clot and then now we’re wrapping it. Can’t use a diuretic with the kidneys.  

Up to ten species of window birds (naked eye without glasses).  

Windsor Arbor view

 It’s a lot harder to post to the blog on my phone then on the tablet and there’s no signal for the tablet.  Windsor Arbor View has been wonderful. came in Thursday night I had an evaluation for PT on Friday and have done PT yesterday and today (Monday and Tuesday).  Five species out the window so far and not including squirrel just birds. I’ll try to write more later

Adventures in healthcare 956

So today’s peer to peer meeting between my doctors and the insurance company evidently went well. I was approved for transfer to a skilled nursing facility. Yay!  

After initial serious problems with the food at the hospital which generally consisted of a slab of proteins that was stone cold, something that I would be suspicious about having dairy in it, and a frozen vegetable I went on a vegan diet at the recommendation of my kidney doctors. This has become a salad diet it seems lol. They bring so much food I get a huge salad with avocado and veggies I get a soupAnd a fruit cocktail. In theory I can get fresh fruit but that’s only happened once. Right now the food is generally excellent and of course being Edinburg there is pico de gallo and salsa Verde. yes the sores in my mouth Have healed

i usually take whatever soup they bring whether it’s meat or vegan And drink some broth and maybe some veg. Today’s soup was onion and cabbage. I so wanted to do a Dickensian request for more but i couldn’t finish the first helping.  

Transfer today or tomorrow.  Or whenever the paperwork is done.  

Two steps!I was able to stand with help and take two steps with my bad leg to get into the new recliner. The old recliner was quite short and the thighs and in the back the new one is larger more my dimensions and much more comfortable I hope especially as I’m sitting here two hours. I already feel it in my car though lol

 Two steps! I was able to stand with help and take two steps with my bad leg to get into the new recliner. The old recliner was quite short and the thighs and in the back the new one is larger more my dimensions and much more comfortable I hope especially as I’m sitting here two hours. I already feel it in my car though lol

Hotel California

https://youtu.be/5x8SlA_A7Cg

So the hospital has been pushing me to go to Arborville a local rehab facility every time they talked about discharging me. it was all their idea. Arborville denied me access under insurance because their rehab is too intense for my level of fitness at this point. But it was never my idea it was the hospitals idea. My doctor is challenging the insurance denying coverage for rehab hopefully it will just be at a lowerLevel of rehab intensity. That’s happening on Thursday. So here I sit.

Amazing changes over the weekendDiabetes. In that case I may be on the road to the rehab fairly quickly. And good news on strong kidneys though I will probably be under watch with them for years

So this morning Monday morning my kidney doctor tells me that he wants to see how my blood work is in the morning tomorrow potentially remove the port that they just installed an end dialysis. The underlying problem may be Diabetes. In that case I may be on the road to the rehab fairly quickly. And good news on strong kidneys though I will probably be under watch with them for years

Lazy weekendAnother transfusion last Friday but I’m feeling pretty good.

Let’s see. Only one blindsided medical test this weekend. I went with it though I still wonder what we’re doing. No dialysis so I’ll start that again tomorrow.  Another transfusion last Friday but I’m feeling pretty good.

Riding on the MTA

 There’s a certain similarity at DHR with is riding on the MTA. Patients are often consulted on what procedures are going to be done and doctors can be clueless. I spent 16 hours today waiting for a minor procedure not allowed to eat. This is on an eight hour fast mind you.  

My day started with my doctor telling me they took my right hand port out yesterday I peeled back my jumpsuit and said and so was this and there was the port. Two different medical professionals told me they were inserting a port today. I spent half an hour talking to Jesse at patient advocacy about being a Bandan in the chair yesterday and about the time it takes to getAny help to get out of the chair. I was falling asleep pushing forward and unsafe in the chair and I could not get any help to get out. That’s a whole different story.

At 1 o’clock I was told it was being moved up in line. That never happened I was one of the last procedures to be done. They did come to take me to dialysis about 1 o’clock and I refuse to go on an empty stomach. Nothing like sitting for two hours on dialysis having had no food for 13 hours.

The most ridiculous thing was the 16 hour fast that I undertook for an eight hour fast. They wake you up here at 2 o’clock for blood draws 2:00 AM mind you. So I was up from 2 AM to 8 AM but not allowed to eat because I wasn’t allowed anything after midnight. I did not go in for the procedure until almost 4 o’clock. When I returned I had clear vegetable broth stew zucchini and the usual Cereal and crap. I’ve been unable to get soda I’ve been unable to get juice.

My recommendation to anyone coming to DHR radiology is to confirm that by 9 AM if they have not been taken in yet they will be eating and they will have to delay the procedure another day. I spent what four days of the last nine not eating because I’m waiting for procedures to avoid for cancel up to 15 hours after I started fasting.

I think the only person that didn’t lie to me today who is Edward and who brought me back up from the procedure and he had no role of the whole thing everybody else was telling me stories saying how sorry they were and yet not fixing a goddamn thing.

MTA lyric Kingston Trio

Welcome from the home with the worlds worst coffee

So yesterday I asked if I could go to the chair by the window and was told that without pt.  Good thing I’m still weaker than I seem For this morning maybe because I was agitating they put me in another chair for two hours.

Dialysis later today and again Wednesday

Food much better today. I asked for vegan - good for kidneys - and the food was edible. And more.  

I spent five hours in the chair this am 

Yesterday a lost cause with nausea aagain sleeping today. Love.

Likely another week in the hospital.  Decisions decisions.  Stay tuned.