So let’s see. Still no biopsy results. No CT results from yesterday not surprising. Creatinine still high. Feeling good.
Note I have an overall Dr kidneyDr internal medicine and more…
Update CT shows a bruise that may be the final-explanation
Note —- missed posting this. Paperwork done for transfer to Arborville but no idea when it will happen.
Well it was a quick CT scan late tonight looking for blood as always. The question is why am I anemic. The kidneys seem to be slow working but off the hook that’s excellent news. No dialysis just slow for now.
So the latest is that they’re going to check with my oncology/hematology department. They are not sure why my hemoglobin is still bouncing around. They are pulling my oncologist into it. Stay tuned.
So monday I got the biopsy about 230 pm. Dr just checked all is good tues. T,hey will keep me here until they get results.
Another transfusion. Good morning here’s your consent ….
Dr. B the kidney doctor said about noon for the CTtoday. Nothing by mouth after midnight. Why more than 8 hrs? No idea. Can’t get the CNA to do her job and can’t get to the CT and woman am I pissed. 251 now. No communication. Had the RN call and they put me at 5 pm last again but didn’t tell a soul on my team. And. Now. 402. Pm. Cancelled to Monday
So I got good news this morning but I was gonna get the biopsy as the last patient of the day because they have to scrub the room after. But unlike other CTs this one they want you not to eat for eight hours which of course they didn’t tell me until lunch didn’t come at 1 o’clock and I had just finished breakfast . But they told me that I was supposed to eat for eight hours before the minor procedure. And they walk in here at 3:15 and canceled the test.
I told Ken it would take me about three days to finish this coffee it’s wonderful to have coffee with flavor even if it’s not hot
So already a visit from the kidney doctor 6:30 in the morning kidney numbers are not improving kidneys are functioning but protein levels creatinine are high. We are going to - get this watch and wait a day or two - and see what happens. Dr B is awesome
I see clouds out the window.
Can’t believe voice to text got creatinine right!
Something Very strange happened today. I felt this emptiness in the pit of my belly. It’s been six or seven weeks since I have been hungry. I actually ate some macaroni. I had a little a couple days ago but this was like most of the serving and I’m still working on it. Yay.
One more day on IV antibiotics for the urine infection.
Waiting on a transfusion for anemia.
A new antibiotic today
Watching Fulmar on deadliest catch
KW is my hero! Thanks for the coffee
Please remember there is nothing more inconvenient than you calling me Expect a hang up
Thanks My sleep schedule is whacko.
The crisis today was they said they couldn’t take blood through the port anymore. Didn’t take long this morning to convince otherwise but then they came for blood cultures. Eventually won that but for awhile we were going to the mattresses. The Dr must have seen rising white count again. They can have all the blood they want from the port. Sticks?. Tell me why
So the nurse came in because my blood sugar has been bouncing from 130 to much higher than that. She was gonna start me on insulin and decided for some reason to do it later. Next sugar is even worse. I’ve got the PA chasing her down. Of course at that moment they came to take me to a CT. Yikes.
my LVN nurse was doing blood sticks on me several times a day even though they were not asked for requested or required. When my blood sugar spiked the only reason we knew was because of her. Thank you!
Now it’s only half what the panic level was. Life is good. Kidneys next.
Lol
They’re transfusing me again after a new type/cross Hemoglobin at 6.2
Waiting on radiology report on kidneys the current concern. Long discussions w Kidney Dr he dropped something about next, week for the move Yikes
And always the vampire rechecking blood
I love my port
Ulcers in my mouth
Candida in my throat
Chest and o2, ok
Kidneys ultrasounded but they did not see much because of the tumors.
UTI
Arthritis in hip / weak right leg
No feeling in feet
Weakness
Another infection they are looking for
Low hemoglobin
What did I forget?
Jeffrey has been my nurse today. He successfully replaced inedible meals for me twice. He’s always present or a page away. PT was good trying to get stronger.
New meds seem innocuous. Hair seems to be falling out again. Large dead patch but I can’t clear it out.
Reminder - Please DO NOT call. Positive airflow COVID room is LOUD.
Ram came today 3am and said he was taking me to a new room. I asked where and he said at the Hampton. Kind of wasn’t kidding. I have a TV for the first time and it’s about a 35 incher. infusion has about 20 inches. But the trade-off is I have to wear a heart monitor 24 seven. So I have to say the main rooms at DHR are much much nicer. Nurses still absent after an initial flurry
New dr new tests including looking into my sore throat and painful hip/ lower back. Also he listened to my food issues. Yay.
So it turns out I still haveIncreasing infection And wbc blood count so I’m in the hospital to tomorrow pm now
Friday night Mike was back on the job and did a bunch of stuff for me before I realized I was not his charge. Later he did trade for me and as a result last night was comfortable as hospital stays go
Sat AM my Dr says Im stable, time to go home. I can’t sit up due to back pain, can’t stand, and still haven’t eaten much. Finally they got me soft and bland food at lunch. The butternut purée was good, the greens were ok, and the chicken ground up at least edible. I’m way off protein. The one other thing I really liked was sweet potatoes a couple days ago.
They found me a rehab (no no no lol) near home but it’s been 4 hours and here I sit.
So my call button wasn’t working after six tries I called the emergency room. Mike appeared care of everything including the freaking alarm that has been going off for an hour and a half. He also knew that they are going to admit me so stay tuned. He gave me his phone number! I like Mike.
Although admitted I never got a room outside the ER. Why do they keep the rooms sub freezing? Brrrr
On the 8th they had disabled calling the ER…
Well my kidney or bladder infection got 3x antibiotics they said it was nasty. I got moved to a COVID room but not kicked out. Still no interest in food. Not much to say.
So add COVID positive test to the list. Super low hemoglobin so transfusions.
Fucking constant bP test Hate it
After eight hours I got some jello and pudding cups. My blood sugar was crashing.
And a bladder infection.
And low blood pressure.
At least they are not sending me home tonight.
So we (PR and I) tried to head out to DHRs Er today. I was able to get to the front door but had to give up. Eventually I had EH call an ambulance.
So for family who asked my o2 stats are at 100%
I saw a Dr at intake then got to an ER room. After sitting unseen for hours the Dr made it and yikes so many tests. A gallon of blood it seemed, X-ray, COVID test Yoda yada.
Transfusions in my future. A bolus of liquid for dehydration. Who knows what else.
Hi
Just a reminder mostly to Family. Do not turn up on my doorstep. You not be admitted. I can’t entertain you. Go to a nearby hotel and GO HOME. Ty
So my Drs PA who I call tweety bird called to be sure I had the meds that insurance had declined initially. I take double the authorized dose and that’s a lot. 13k a month. She says she never saw a message about my being sick and said anything over 100.4 I should go to the ER. And yes my Dr is on vacation this week. Argh. 100.4 is what I call afternoon…
They were supposed to come and replace my door lock today but the person didn’t show up for work. They trying to find someone else to do it. I can’t walk the back way out of the property it’s too long a hike so I’m stuck. The ever helpful receptionist / organizer said maybe she could come do it. We will see.
Meanwhile PR came over so I wouldn’t be alone with the handyman and has been going great guns on dozens of things that have been annoying me. I was able to eat half a milk shake and a part of an egg roll so solid food yay.