Thursday, October 27, 2022

PT is beating my ass

 Belinda - maybe 5 feet tall and ultra petite - has been exhausting me with PT.  We are working on standing and holding it. I still get anxious, maybe it’s the altitude.  Lol.  She’s great, quite the cheer leader.  I still/again need a lot of assistance with standing but we are working on that.  

Monday, October 24, 2022

Boring beats exciting I think this is mostly due to the swelling. So I sit here with my legs wrapped and elevated and hope that the edema goes down.

 Still lots of swelling in the legs so they are hard to pick up and move. That makes PT difficult.Otherwise same old same old especially over the weekends when not much happens here.  That beats the excitement of last week.

I have not yet recovered from the hospital stay as far as mobility.  I think this is mostly due to the swelling. So I sit here with my legs wrapped and elevated and hope that the edema goes down.

Friday, October 21, 2022

Welp never again

 I had my first and last nebulizer treatment with albuterol last night. Five minutes after it was done I had most of the bad side effects. 

First came the discomfort in my chest and then dinner reappeared. The level of anxiety was huge. My heart rate jumped and  I was vomiting and hmy hand trembly   Heart rate nearly 140 when my normal is 90-110. 

I had the option to go to the hospital ofc.  The nurse consulted the doctor constantly - this at midnight - and we brought the heart rate down with meds.  The nurse stayed with me until symptoms eased. I am liking the 100 heart rate this morning. 

Thursday, October 20, 2022

More drugs

 Slight shallowness of breath so I will get some meds including allergy for that. 

Lots of swelling in my legs making it hard to list my legs AGAIN so Lasix to try to reduce it. 

Thanks to all who have reached out to me!

Thursday, October 13, 2022

Part 2

After a couple years of Stability my cancer exploded more than 30% since the last scan in early July. I am still hospitalized (4 months and a week?) so they did a biopsy to test for potential success for immunotherapy.  Mixed feelings as I have been wanting the test. 


Low blood sugar when I have to fast for tests (no shocker there).  


Hope to be back in rehab soon


Love to

You

All 

Biopsy #3

 They squeezed me in for biopsy number three today. I hate waiting. Next they will do testing on the biopsy samples to see if I have the potential for immunotherapy to give good results. I have been wanting the immunotherapy testing so that’s a positive thing.