Monday, November 21, 2022

Home today

 So I’m headed home today. Not sure I’m ready but I’m going.  I have some stuff to assemble and some volunteers to do it and I plan on cooking Thanksgiving dinner later this week.  Lots of gardening to do too.stay tuned. I’m so ready to be home! 

Friday, November 4, 2022

Total confusion

 Two weeks ago I got the news that my tumors had grown 30%.  I was in the hospital so it was easy to ad in a CT guided biopsy of the tumor near the left kidney.   


The biopsy shows no cancer in the cells taken.   It is possible it’s good news (tumor fragmenting and dying) or it could be something else.  We will rescan in two months. In the mean time I m not letting myself think it’s gone.   Please no overtly positive comments.  I think my oncologist is as confused as I am.   

Tuesday, November 1, 2022

Back to nausea

Yesterday and today I got sick (nauseous and vomiting) during PT.  It was quickly over but limited our work from standing to just sitting up.  Then I was visited by the social worker ans head of PT telling me mmy discharge date was firm for Friday since I wasn’t making progress.  The week at the hospital really set me back.  After we talked about my issues with backsliding (edema makiNg legs heavy in addition to the hospital) they extended that two weeks.  But that will be the drop dead date. I can leave earlier but not later.  I’m going to try takNg zofran (a whopping 4 mg) before PT tomorrow.  At the hospital I got 40 mg but here only 4 mg.  It still seems to take the edge off.  

Thursday, October 27, 2022

PT is beating my ass

 Belinda - maybe 5 feet tall and ultra petite - has been exhausting me with PT.  We are working on standing and holding it. I still get anxious, maybe it’s the altitude.  Lol.  She’s great, quite the cheer leader.  I still/again need a lot of assistance with standing but we are working on that.  

Monday, October 24, 2022

Boring beats exciting I think this is mostly due to the swelling. So I sit here with my legs wrapped and elevated and hope that the edema goes down.

 Still lots of swelling in the legs so they are hard to pick up and move. That makes PT difficult.Otherwise same old same old especially over the weekends when not much happens here.  That beats the excitement of last week.

I have not yet recovered from the hospital stay as far as mobility.  I think this is mostly due to the swelling. So I sit here with my legs wrapped and elevated and hope that the edema goes down.

Friday, October 21, 2022

Welp never again

 I had my first and last nebulizer treatment with albuterol last night. Five minutes after it was done I had most of the bad side effects. 

First came the discomfort in my chest and then dinner reappeared. The level of anxiety was huge. My heart rate jumped and  I was vomiting and hmy hand trembly   Heart rate nearly 140 when my normal is 90-110. 

I had the option to go to the hospital ofc.  The nurse consulted the doctor constantly - this at midnight - and we brought the heart rate down with meds.  The nurse stayed with me until symptoms eased. I am liking the 100 heart rate this morning. 

Thursday, October 20, 2022

More drugs

 Slight shallowness of breath so I will get some meds including allergy for that. 

Lots of swelling in my legs making it hard to list my legs AGAIN so Lasix to try to reduce it. 

Thanks to all who have reached out to me!