Hotel California

https://youtu.be/5x8SlA_A7Cg

So the hospital has been pushing me to go to Arborville a local rehab facility every time they talked about discharging me. it was all their idea. Arborville denied me access under insurance because their rehab is too intense for my level of fitness at this point. But it was never my idea it was the hospitals idea. My doctor is challenging the insurance denying coverage for rehab hopefully it will just be at a lowerLevel of rehab intensity. That’s happening on Thursday. So here I sit.

Amazing changes over the weekendDiabetes. In that case I may be on the road to the rehab fairly quickly. And good news on strong kidneys though I will probably be under watch with them for years

So this morning Monday morning my kidney doctor tells me that he wants to see how my blood work is in the morning tomorrow potentially remove the port that they just installed an end dialysis. The underlying problem may be Diabetes. In that case I may be on the road to the rehab fairly quickly. And good news on strong kidneys though I will probably be under watch with them for years

Lazy weekendAnother transfusion last Friday but I’m feeling pretty good.

Let’s see. Only one blindsided medical test this weekend. I went with it though I still wonder what we’re doing. No dialysis so I’ll start that again tomorrow.  Another transfusion last Friday but I’m feeling pretty good.

Riding on the MTA

 There’s a certain similarity at DHR with is riding on the MTA. Patients are often consulted on what procedures are going to be done and doctors can be clueless. I spent 16 hours today waiting for a minor procedure not allowed to eat. This is on an eight hour fast mind you.  

My day started with my doctor telling me they took my right hand port out yesterday I peeled back my jumpsuit and said and so was this and there was the port. Two different medical professionals told me they were inserting a port today. I spent half an hour talking to Jesse at patient advocacy about being a Bandan in the chair yesterday and about the time it takes to getAny help to get out of the chair. I was falling asleep pushing forward and unsafe in the chair and I could not get any help to get out. That’s a whole different story.

At 1 o’clock I was told it was being moved up in line. That never happened I was one of the last procedures to be done. They did come to take me to dialysis about 1 o’clock and I refuse to go on an empty stomach. Nothing like sitting for two hours on dialysis having had no food for 13 hours.

The most ridiculous thing was the 16 hour fast that I undertook for an eight hour fast. They wake you up here at 2 o’clock for blood draws 2:00 AM mind you. So I was up from 2 AM to 8 AM but not allowed to eat because I wasn’t allowed anything after midnight. I did not go in for the procedure until almost 4 o’clock. When I returned I had clear vegetable broth stew zucchini and the usual Cereal and crap. I’ve been unable to get soda I’ve been unable to get juice.

My recommendation to anyone coming to DHR radiology is to confirm that by 9 AM if they have not been taken in yet they will be eating and they will have to delay the procedure another day. I spent what four days of the last nine not eating because I’m waiting for procedures to avoid for cancel up to 15 hours after I started fasting.

I think the only person that didn’t lie to me today who is Edward and who brought me back up from the procedure and he had no role of the whole thing everybody else was telling me stories saying how sorry they were and yet not fixing a goddamn thing.

MTA lyric Kingston Trio

Welcome from the home with the worlds worst coffee

So yesterday I asked if I could go to the chair by the window and was told that without pt.  Good thing I’m still weaker than I seem For this morning maybe because I was agitating they put me in another chair for two hours.

Dialysis later today and again Wednesday

Food much better today. I asked for vegan - good for kidneys - and the food was edible. And more.  

I spent five hours in the chair this am 

Yesterday a lost cause with nausea aagain sleeping today. Love.

Likely another week in the hospital.  Decisions decisions.  Stay tuned.